The Institute for Advanced Clinical Trials for Children (I-ACT for Children) is committed to protecting your privacy in connection with use of our website (“Website”). This Website is owned and operated by the Institute for Advanced Clinical Trials for Children (collectively “I-ACT for Children,” “we,” or “us”). This Privacy Statement (the “Statement”) applies to all information collected by or submitted to us through our Website.

This Statement is intended to help you understand how we collect, use, safeguard and disclose the information collected on our Website. This Statement does not apply to the use or disclosure of information that is collected or obtained through means other than this Website.

I-ACT for Children reserves the right to revise this Statement at any time by posting a revised Statement on this Website. When we make material changes to this Statement, we will notify you either by placing a prominent notice on the home page of the Website, or by sending you a notification directly. Use of this Website after such change and notification signifies the user’s acceptance of the changed terms. Please review this Statement periodically to stay informed about the procedures used to protect the personal information you provide to us.

Collection of Information

The information I-ACT for Children collects generally includes: (1) personal information you supply, and (2) tracking information collected as you navigate through the Website.

Information Collected From You

Visitors may generally browse public portions of the Website anonymously without providing any personal information. However, personal information may be requested in connection with requesting services, requesting additional information, signing up for newsletters, participating in forums, submitting questions, or otherwise to interact with this Website.

WE URGE YOU NOT TO PROVIDE ANY CONFIDENTIAL INFORMATION ABOUT YOU OR YOUR HEALTH TO US VIA ELECTRONIC COMMUNICATION. IF YOU DO SO, IT IS AT YOUR OWN RISK.

Information Collected Through Technology

To tailor the Website to your needs, I-ACT for Children collects information using technology, such as IP addresses and cookies. For example, your IP address provides us with non-personally identifiable information about how you entered the Internet, namely through your Internet service provider, your company or some other source, and can permit us to identify the frequency with which you visit the Website. Standard features in Internet browser software such as “cookies” allow websites to track certain user activities by assigning each visitor a unique number that resides on your computer. We use cookies to make the Website more interesting and useful and to provide our visitors with notice of products and services which may be of interest (for example, cookies let us know which of our sites you have been visiting and which you have not). We use “cookie” technology to obtain non-personal information from its online visitors. Our servers may also collect the IP addresses and domain names of visitors for site administration purposes. We do not extract personal information in these processes. We may use some of the information collected to tie back that information to personally identifiable information that you provide voluntarily on the Website to provide you with information about products and services that may be of interest to you.

Children’s Privacy

We are committed to protecting the privacy of children. This Website is intended only for adults and young adults age 13 and over. It is not intended for or designed to attract persons under the age of 13. No one under age 13 may provide any personal information to or on the Website. We do not permit registration by, nor do we collect personally identifiable information from, any person we actually know to be under the age of 13.

Your Privacy Rights

In some regions (like the European Economic Area), you have certain rights under applicable data protection laws.  These may include the right (i) to request access and obtain a copy of your personal information, (ii) to request rectification or erasure; (iii) to restrict the processing of your personal information; and (iv) if applicable, to data portability. In certain circumstances, you may also have the right to object to the processing of your personal information. To make such a request, please use the contact details provided below. We will consider and act upon any request in accordance with applicable data protection laws.  

If we are relying on your consent to process your personal information, you have the right to withdraw your consent at any time. Please note however that this will not affect the lawfulness of the processing before its withdrawal.

Security Measures

I-ACT for Children uses firewalls, vulnerability scans and secure server encryption technology to protect personally identifiable information. However, while we employ reasonable security measures to protect your personal information, please be aware that no method of electronic transmission is completely infallible, and we cannot guarantee the absolute safety of your information.

I-ACT for Children’s Use of Information

Any information collected on the Website will be used by us for (i) the purpose stated at the time of collection and (ii) to create mailing lists which are used by us to send newsletters, announcements, press releases, notification of educational sessions, and other such content that serves to advance our mission. At the time that you provide your personal information, you can opt-out of I-ACT for Children e-mail lists if you do not want to receive e-mail communications from us. I-ACT for Children members may be automatically added to I-ACT for Children e-mail lists. E-mail addresses may be removed from I-ACT for Children e-mail lists at any time by following the applicable opt-out procedure specified in the list welcome message. Users also might be removed for other reasons, such as repeated bounced e-mails and membership expiration, etc.

Contact Information

If you have questions or comments about this policy, email us at  info@iactc.org or by post to:

I-ACT for Children
9211 Corporate Blvd. Suite 260, Rockville, MD  20850